Supporting Research Initiatives with Real-World Data
HSX is increasingly asked to support researchers who seek to leverage HSX’s robust clinical data repository (CDR) to study aggregated data as a HIPAA Limited Data Set (LDS) or via patient-authorized research.
Health Data for Action (HD4A)
A signature program of the Robert Wood Johnson Foundation (RWJF) which is designed to leverage health data for actionable insights and is aligned with RWJF’s efforts to engage the healthcare sector in promoting population health and broader policy considerations.
- Drexel University School of Public Health leveraged the HSX CDR to assess individual and neighborhood-level indicators of social determinants of health (SDoH) as predictors of COVID-19 outcomes.
- University of Temple College of Public Health utilized retrospective data from HSX’s CDR to create predictive modeling of primary care visit adherence and emergency department use for patients with hypertension and Type II diabetes.
Measuring the Incidence of Obesity Using a Distributed Electronic Health Record Network: A New Approach to Public Health Surveillance
HSX collaborated with Health Care Cost Institute, funded by RWJF, to assess the validity of and capacity for measuring the prevalence of obesity using real-time electronic health records.
The success of this surveillance strategy will help supplement current strategies for public health and health promotion.
HSX Member Patient-Authorized Research Projects
- Beyond English Proficiency: Older Adults Negotiating Health & Social Services
- Community Links for Opioid Use Disorder (CLOUD)
- Post-Acute Transitional Intervention for Opioid Treatment
- Creation of a Continuity of Care Document (CCD) that will inform dental care and use health indicators in a model to predict risk of developing periodontal disease
Several other patient authorized research projects that are in the HSX pipeline. For further information, please refer to HSX’s Patient Authorized Research Use Case.